Support the Federation through Book Purchases
The Federation is pleased to announce its associations with Amazon.com the "World's Biggest Bookstore" and Disability Books. As an Associate, the Federation is eligible to receive a percentage of all sales registered by amazon.com and disabilitiesbooks.com when the buyer links through our website!
 My Daughter, My Teacher: Mary Ann, Autistic in English
and Spanish
By Martha Ziegler
Martha Ziegler, founder and former Executive Director of the Federation for Children with Special Needs, has played a crucial role in creating the legislation and attitude changes that have considerably enhanced the opportunity for all children with disabilities to live a full life. In her efforts to achieve quality educational opportunities first for her daughter Mary Ann, Martha furthered a movement that would begin to change forever the life possibilities for children with disabilities in the United States and around the world. At the heart of all of Martha's advocacy is a vision of respect, dignity, love, and human rights for her daughter and all persons with disabilities. In “My Daughter, My Teacher: Mary Ann, Autistic in English and Spanish”, Martha Ziegler shares the experiences that have molded her prolific mark on the disability community.
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 Knowing Jesse: A Mother's Story of Grief, Grace,
and Everyday Bliss
By Marianne Leone
In her new book, “Knowing Jesse”, actress and screenwriter Marianne Leone details her son Jesse’s life and shares her insight on the challenges and benefits of raising a child with a disability. Jesse was born prematurely in 1987. As a result he developed cerebral palsy and Marianne and her husband, actor Chris Cooper became strong advocates not only for their son, but for all children with disabilities. Sadly, Jesse Cooper died from medical complications on January 3, 2005 at the age of 17.
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The following selections are available through disabilitiesbooks.com. In order for the Federation to receive its share of the proceeds you will need to enter FCSN into the "Redeem Coupon" field on the order form. Thank you for your support.
 Legal Planning for Special Needs In Massachusetts: A Family Guide to SSI, Guardianship, and Estate Planning, 2010 Edition
By Barbara D. Jackins, Attorney
In a relaxed, conversational style, Attorney Barbara D. Jackins explains the essential elements of SSI, guardianship, and estate planning when there is a child with a disability in the family. You will find the information you need to:
- Obtain SSI Benefits for your own son or daughter who is 18
or older.
- Contribute to your adult son's or daughter's financial support without reducing SSI.
- Understand the court process for guardianship, including what must be done if your son or daughter takes any antipsychotic medication.
- Learn about the alternatives to guardianship.
- Protect your son's or daughter's inheritance from being lost of mismanaged while assuring continued public benefits.
- Coordinate your life insurance and retirement assets with your overall estate plan.
Don't live in Massachusetts? Then you can simply ignore the fine points about that state's guardianship laws and procedures. The rest of the book--her practical estate planning strategies and SSI pointers-- will get you on track no matter where you live.
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 Managing a Special Needs Trust: A Guide for Trustees.
2010 Edition
By Barbara D. Jackins, Richard S. Blank, Ken W. Shulman,
Harriet H. Onello
Managing a Special Needs Trust: A Guide for Trustees is an invaluable resource for anyone who is managing a special needs trust for a person with a disability. Formerly called Special Needs Trust Administration Manual: A Guide For Trustees, this book has been completely revised, updated, and expanded to cover all 50 states.
The authors, who are all attorneys, bring many years experience in guiding trustees through the complicated rules of public benefits and special needs trusts. In clear, easy to understand language, the authors provide practical strategies trustees can use to:
- Open a new trust
- Take over a trust that is already up and running
- Manage the trust in ways that will maximize government benefits, including SSI and public housing
- Report to the beneficiary with a disability and other family members
- Minimize income taxes
- Manage the trust investments
- Work effectively with attorneys, financial advisers, tax advisers, case managers, and social workers
Managing a Special Needs Trust: A Guide For Trustees is a useful resource for anyone who wants to know more about disability trusts and public benefits.
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