Support the Federation through Book Purchases
The Federation is pleased to announce its associations with Amazon.com the "World's Biggest Bookstore" and Disability Books. As an Associate, the Federation is eligible to receive a percentage of all sales registered by amazon.com and disabilitiesbooks.com when the buyer links through our website!
 Knowing Jesse: A Mother's Story of Grief, Grace,
and Everyday Bliss
By Marianne Leone
In her new book, “Knowing Jesse”, actress and screenwriter Marianne Leone details her son Jesse’s life and shares her insight on the challenges and benefits of raising a child with a disability. Jesse was born prematurely in 1987. As a result he developed cerebral palsy and Marianne and her husband, actor Chris Cooper became strong advocates not only for their son, but for all children with disabilities. Sadly, Jesse Cooper died from medical complications on January 3, 2005 at the age of 17.
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Schedule of Appearances for Marianne Leone
 My Daughter, My Teacher: Mary Ann, Autistic in English
and Spanish
By Martha Ziegler
Martha Ziegler, founder and former Executive Director of the Federation for Children with Special Needs, has played a crucial role in creating the legislation and attitude changes that have considerably enhanced the opportunity for all children with disabilities to live a full life. In her efforts to achieve quality educational opportunities first for her daughter Mary Ann, Martha furthered a movement that would begin to change forever the life possibilities for children with disabilities in the United States and around the world. At the heart of all of Martha's advocacy is a vision of respect, dignity, love, and human rights for her daughter and all persons with disabilities. In “My Daughter, My Teacher: Mary Ann, Autistic in English and Spanish”, Martha Ziegler shares the experiences that have molded her prolific mark on the disability community.
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The following selections are available through disabilitiesbooks.com. In order for the Federation to receive its share of the proceeds you will need to enter FCSN into the "Redeem Coupon" field on the order form. You can also purchase both books for $45.00 by clicking "Special Offers". Thank you for your support.
 Legal Planning for Special Needs In Massachusetts: A Family Guide to SSI, Guardianship, and Estate Planning, 2010 Edition
By Barbara D. Jackins, Attorney
In a relaxed, conversational style, Attorney Barbara D. Jackins explains the essential elements of SSI, guardianship, and estate planning when there is a child with a disability in the family. You will find the information you need to:
- Obtain SSI Benefits for your own son or daughter who is 18
or older.
- Contribute to your adult son's or daughter's financial support without reducing SSI.
- Understand the court process for guardianship, including what must be done if your son or daughter takes any antipsychotic medication.
- Learn about the alternatives to guardianship.
- Protect your son's or daughter's inheritance from being lost of mismanaged while assuring continued public benefits.
- Coordinate your life insurance and retirement assets with your overall estate plan.
Don't live in Massachusetts? Then you can simply ignore the fine points about that state's guardianship laws and procedures. The rest of the book--her practical estate planning strategies and SSI pointers-- will get you on track no matter where you live.
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 Managing a Special Needs Trust: A Guide for Trustees.
2010 Edition
By attorney and parent Barbara D. Jackins and her colleagues Richard S. Blank, Ken W. Shulman, and Harriet H. Onello
Managing a Special Needs Trust is a completely revised, updated, and expanded edition of Special Needs Trust Administration Manual: A Guide for Trustees (2004, 2005). Even though earlier editions focused on Massachusetts laws and procedures, over 10,000 copies were purchased by parents, family members, and professionals across the USA. The authors have done much more than change the name. “Readers of the previous editions will notice one major change…this book applies to all states…we cover uniform statutes that have been adopted in most states. We also focus on the rules of major federal benefit programs that provide cash, medical benefits, and housing subsidies to people with disabilities.”
Managing a Special Needs Trust: A Guide for Trustees is an easy-to-understand reference guide for parents, individuals with disabilities, family members and advocates as well as attorneys, financial planners, tax advisers, social workers and educators—anyone who is managing a special needs trust and/or working with families on future planning for a family member with a disability. This 242-page book clearly explains how special needs trusts relate to the complicated public benefit programs that assist people with disabilities. This book tells how to:
- Understand the rules of major public programs that provide cash, medical care, and housing assistance to a family member with a disability.
- Use practical strategies to pay for items and services that an individual needs without reducing public benefits.
- And much more…
All families (including families with limited assets) can consider establishing a special needs trust because it is not necessary to put any money into an account when they sign the trust. When parents are gone, a portion of their estate, life insurance benefits, and other funds can pass to the special needs trust.
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